Tuesday, September 21, 2010

Guess who is talking?


Fall is here in New England and both boys are in school full time and loving it so far! Ryan does not love getting up at 6am but he is adjusting. Poor little guy has to get on his bus at 6:45am and has been a trooper. Cj has been waking up for school at 4am...ouch! This results in napping for an hour at school which is not good! But the last two days he has managed to sleep in until 5:30am! (Yay!)

When we woke up today Cj said HELLO (perfectly) I said HELLO back. He laughed. Then his brother Ryan came into the room and Cj laughed again and said RYYYYY! Ryan laughed and could not believe his ears! He just kept saying did you hear that Mommy! Then I said I love you and Cj said IIIIIIIIIII WUV YOU back! I would of kept on going all day but we had to get up and get ready for school. Hopefully this will continue!
I don't know folks but maybe just maybe this is a new beginning for a speech breakthrough...some real words! I have been hearing him say Ma loudly the last couple weeks when he needs something. He has said drink, wawa (water) more, wuv ya and ya (yes) in the past but nothing like this. He also has been trying to verbalize his choices lately too. Maybe his new speech therapist has a trick up her sleeve or maybe his brain is waking up? I am going to contact his speech therapist and see what she has to say about this new development!

All I can say is that we are thrilled!


Tuesday, September 7, 2010

BOTH BOYS ARE IN SCHOOL FULL TIME!





Having a SN kiddo is tough work to say the least. Rewarding but tough! All the therapies, early intervention, ABR 2-4 hours plus a day for 5 years, doctors appointments, IEP's, feeding, bathing, changing diapers, dressing, equipment clinics and the list goes on and on and on. Plus having a very social, bright and active 5 year old is more work! I know kids are lots of work SN or not. But all you SN Moms know what I mean. We are warriors! I never thought this day would come.
BOTH BOYS ARE IN SCHOOL FULL TIME!
It is Ryan's first day of kindergarten and the bus came at 6:30 I was told 7:30! Alarm was set for 6:40. Oh well my husband drove him his first day which I wanted anyway. My husband ask what are you going to do today? I said NOTHING absolutely NOTHING! I did not even cry! (Should I feel guilty?) Freedom! Time to read, workout and start my portrait business! I will miss the little guys but it is time for me time!
P.S. Cj is doing much better...notice the two top teeth! Gone! It helped having them pulled and a new mouth guard!

Thursday, August 26, 2010

HERE WE GO AGAIN :(


Cj has been doing so well with his new mouth guards (two different sets) in school and at home. I did not think we would be going down this road again so soon. Let alone before school starts with a new teacher next week!
I am so worried about him! Last Wednesday I noticed he was really working his mouth with his tongue and his loose top tooth! I know this is normal for kids. Thursday he was not watching TV or playing just trying to get to his tooth and trying to bite his lip. I called our wonderful dentist and he told us to come in the next day (Friday at 8:00 am) and he would pull his top two baby teeth.
Well Thursday night at 3 am I woke up to a bloody mess. He figured out how to bite his lip over the guard (the Lesch Nyhan kicked in). His lip is a mess! My husband suggested to put in the first guard the dentist made and it worked...but only for a few days. He had his teeth pulled Friday am and he did a great job tolerating the whole procedure. The old guard was still working. On Sunday night he went wild trying and succeeding in biting the lower lip with the old guard the dentist made. I had to put the first mouth guard that I made him back on Sunday night. I took one of the newest guards and put some masking tape on the front of it to bump the bottom lip out and it worked for about 3 hours until it got too soggy and fell out. I called the dentist and they are going to try a new guard to bump the lip out.
We were going to go to the Cape for a few days of rest before school starts but had to cancel. He is just too uncomfortable.

Please pray we will get the new guard and it will WORK before next Wednesday when he starts kindergarten!

Monday, August 16, 2010

BROTHERLY LOVE....


Could not help but post this! I was cooking dinner and walk in on them!

Cj Graduated Preschool :)




We are so proud of him and he was so proud of himself! He will start a kindergarten program focusing on communication. I have been testing him daily and his reading skills are really developing. I will write three words and he is picking the correct word! You can not imagine how happy I am about this. At school on the computer voice output he is picking books over toys! He is so proud of himself it is too cute! I will have to get this on video!