They are great doctor's and spent over two hours with us. We are going to meet with them every six months.
Christopher is going to have a Spiral MRI on his kidneys to see if they have been damaged by the uric acid. He is also going to have a MRS. Which I believe shows the fluids in the brain. I have to look that one up.
I am very optimistic and hopeful for a break through. Please pray for our Christopher and a cure. I will keep you all posted.