Thursday, August 26, 2010


Cj has been doing so well with his new mouth guards (two different sets) in school and at home. I did not think we would be going down this road again so soon. Let alone before school starts with a new teacher next week!
I am so worried about him! Last Wednesday I noticed he was really working his mouth with his tongue and his loose top tooth! I know this is normal for kids. Thursday he was not watching TV or playing just trying to get to his tooth and trying to bite his lip. I called our wonderful dentist and he told us to come in the next day (Friday at 8:00 am) and he would pull his top two baby teeth.
Well Thursday night at 3 am I woke up to a bloody mess. He figured out how to bite his lip over the guard (the Lesch Nyhan kicked in). His lip is a mess! My husband suggested to put in the first guard the dentist made and it worked...but only for a few days. He had his teeth pulled Friday am and he did a great job tolerating the whole procedure. The old guard was still working. On Sunday night he went wild trying and succeeding in biting the lower lip with the old guard the dentist made. I had to put the first mouth guard that I made him back on Sunday night. I took one of the newest guards and put some masking tape on the front of it to bump the bottom lip out and it worked for about 3 hours until it got too soggy and fell out. I called the dentist and they are going to try a new guard to bump the lip out.
We were going to go to the Cape for a few days of rest before school starts but had to cancel. He is just too uncomfortable.

Please pray we will get the new guard and it will WORK before next Wednesday when he starts kindergarten!

Monday, August 16, 2010


Could not help but post this! I was cooking dinner and walk in on them!

Cj Graduated Preschool :)

We are so proud of him and he was so proud of himself! He will start a kindergarten program focusing on communication. I have been testing him daily and his reading skills are really developing. I will write three words and he is picking the correct word! You can not imagine how happy I am about this. At school on the computer voice output he is picking books over toys! He is so proud of himself it is too cute! I will have to get this on video!

Thursday, August 5, 2010

The little blue chair...

Christopher had a little blue feeding and activity chair I bought at Babies R Us when he was only 9 months old. Little did I know that he would be using this chair up until the age of 6! Not only was this his activity and feeding chair it was his hanging out with his brother chair, TV chair, beach chair, grooming chair, coloring and learning chair, ABR therapy chair...the list goes on! He went through 5 little blue chairs.

Today I finally threw out his last little blue chair! It was so worn and broken. I had a little cry bringing this little piece of equipment out to the trash that only cost us $29.99. This was the most useful piece of equipment we have used so far!

I went into the living room and looked at his new $800.00 tomato chair. Great looking but he does not even like this chair! It got me thinking once again. What is wrong with the equipment system? The prices for everything our special kids need is sky rocket!! The insurance companies get away with so much! They target special needs parents and the medical supply companies. We are stuck in such a tough position that is just not fair. I am fighting for four very expensive pieces of necessary equipment at the time. Equipment that will help him have a much better life and I know it will take forever to get. Why can't we just go to Special Needs R Us?

God I will miss that little blue chair!