Christopher had a wheelchair clinic on Wednesday! We think we are going to get the X-Panda by Snugseat with the multi position frame. It is so confusing because there are sooo many options for accessories. But he seemed really comfortable in the chair and it is pretty good looking to boot.
I think we will go for the Blue seat with Silver frame or Black seat with Blue frame or Red frame. Everyone who helped, his PT, OT and the two reps made the X-Panda an easy choice! We have looked at quite a few and I like all the options available with this chair.
Sorry about the lousy picture! You can view at http://www.snugseat.com/.
This is a blog about Christopher's new diagnosis. We want to update our family, friends and other families we have connected with that have injured children or a child with a rare disease. I am hoping this blog will help all understand what it is like to be blessed with such a child.
Thursday, March 25, 2010
Saturday, March 20, 2010
Thursday, March 18, 2010
Jonathan Burke Foundation Fund
Thanks to ABR and the Jonathan Burke Foundation we were accepted for a $2000.00 fund to help pay for ABR! Thank you Lula and Annie! We feel honored and hope to raise more soon so we can continue ABR.
We also need to start looking into a new handicap accessible vehicle with a ramp for Christopher. He is just getting too big for us to get him in and out of our current vehicles!
We have some great friends helping us organize a couple of fund raisers! We will keep you posted!
I have to run. I have two monkey's on my back.....Ryan and Cj. It is too nice out too be in. Out we go....
P.S. (I posted the foundation blog)
We also need to start looking into a new handicap accessible vehicle with a ramp for Christopher. He is just getting too big for us to get him in and out of our current vehicles!
We have some great friends helping us organize a couple of fund raisers! We will keep you posted!
I have to run. I have two monkey's on my back.....Ryan and Cj. It is too nice out too be in. Out we go....
P.S. (I posted the foundation blog)
Wednesday, March 17, 2010
Tuesday, March 16, 2010
Renal Tests.... Dr. was very pleased!!!
Yeyyyyy!!! Christopher's uric acid levels were 3 after the drug Allopurinol!!! (just right according to the Dr. ....they were high 8.9). His blood work was perfect and he has no kidney stones!!! We are very happy with the results!!!
Also happy with the Sun, Sun ,Sun!!! We now need warmth!!!
Also happy with the Sun, Sun ,Sun!!! We now need warmth!!!
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