This is a blog about Christopher's new diagnosis. We want to update our family, friends and other families we have connected with that have injured children or a child with a rare disease. I am hoping this blog will help all understand what it is like to be blessed with such a child.
Saturday, April 24, 2010
Back to square one.....
Subscribe to:
Post Comments (Atom)
Have you tried contacting exomotion yourself? they might be able to point you to someone who can help.
ReplyDeleteWhen my daughter was having infantile spasms,ACTH, the drug that stopped them, could not be purchased through the hospital. We tried a different drug for seven weeks and her spasm only got worst. Eventually we were given a prescription for ACTH, but were told we had to get it on our own. It was over 20k PER 5ML. We contacted the Co. that made it. We had the drug in 3 days at the tune of 40 dollars for 30 ml. - our insurance covered it. Try contacting exomotion. God works in amazing ways.
ReplyDeleteI hope things are going well with Christopher and family. God bless,
ReplyDelete